Wednesday, May 29, 2013

Day +104 and 1 year (from karen)


Got an update for one and all. Everyone can remember the many sagas of Tony's eyes. We have been working since December to get a special therapy for him called Prose. Prose are prosthetic contact lenses that have a reservoir for saline solution built in so that Tony's eyes are both shielded and lubricated all day long. We finally got the insurance company to approve the Prosthetics. Tony is going to Chicago tomorrow and having his first appointment on Friday. YEAH! We are so hopeful that these lenses will be a quality of life changer for Tony! A lot of people have trouble with them but not many people have the incentive Tony has to make it work out. Keep fingers crossed everyone!

Beyond that, we haven't much else to report. We are just working to keep moving forward. It often feels like there is always something else wrong. On the bright side, Tony has begun riding his bike regularly. He started with “Ride to Work Day” in late April and has spent the last few Sunday's on short rides with our friend Colin and his fantastic and adventurous 9 year old daughter! What a chance for Tony, to watch and ride with a new Mountain Biker developing her skills! 

Its great to finally be at this point!  Peace out all.