Day +80

Well I managed to get discharged from the hospital late yesterday, so I am once again home and on my terms. There has been no great revelations or treatment options for the BK virus, in fact there is so little that can be done that the doc’s feel we can maintain things at home just as good (or better) than as an inpatient. So here I am at home peeing every 15 to 20 minutes.  You would be surprised how inconvenient these interruptions can be, even trying to read a book is tough as you end up rereading the same segment every time. We have been able to control the pain with the help of dilautin (some good stuff if you can get your hands on it), so that has made things a bit easier (and harder). Now that I am back on somewhat high doses of pain pills it is hard to stay focused and awake so I feel we are still stepping backwards. Ok I am not going to rant here, this is just an update.  We just have another hurdle to face as we get through all this.

Thanks Everyone.

FYI, Karen has closed the “care calendar” as we have kind stopped using it. With that said and people asking -  we are ready to take on any meals that people have been holding out with.

Sorry, it looks like I am not going to get the “peach fuzz” post out, but I thought I would throw-out the photo anyways.

One step back

Hello All,

Once again, sorry for the delay in updating the Blog, I had been waiting for the 75 day mile stone. I had even put together a nifty title and photo (“peach fuze and progress”) as I am beginning to grow back hair on my head. Well unfortunately, my body had other plans and as of Friday we have been dealing with the “BK” urinary virus, that's right- a virus not an infection. I am making the distinction here because just taking a few antibiotics for a few days is not the treatment. Not to get too graphic, the BK virus is a very painful urination process as you pass blood clots. Additionally, in my case, I have the need or sensation to release my bladder every 15 to 20 minutes. So I have been re-admited to the hospital to help control the pain and watch for other issues. There is no real treatment for the BK virus, we just need it to run its course. It will likely be weeks before this will be cleaned up. Hopefully with no additional complications I will be able to return home this weekend (we will see). Not to say this is good news but, these types of issues are not uncommon with transplant patients, its just a bit harder for us to deal with them because we are still “building” my immune system.

OK I will save the “peach fuze and progress” for another time.

Tony