We made it to Day 100! This is a huge milestone - it shows that my body is going to be OK with this transplant. We still don’t have everything in me working right yet and I may still have hospital stays ahead, but we can now believe the transplant is working. Did it cure me of the T-Cell Limhoma is still a question, but one we hope to learn more about that very soon. I will be on meds for the a very long time to come to try and keep things at bay as my body continues to adjust to my new immune system. It is truly remarkable to have finally reached this milestone. We have been looking at this goal for so long now. I can remember the count down ring my niece and nephew made and seeing that shrink down day by day has been a great inspiration and at times showed the magnitude of this process. We are so happy to have made it this far, there have been some trying times and I am sure there will be a few more but with the love and support you all have been shining our way I am sure we can make it through the next phase.
So what is the next phase? Well we do a bunch of test, which I have already started this week (CAT, PET, Pluminary...) to do some before and after comparisons. Looking to see that my cancer is gone and what steps can we take to better my quality of life after transplant. As I said above, I am going to be on meds for a long time (some maybe forever), we need to find the right combination and/or routine to “make things work” for me. I still am dealing with nerve ending issues and other things so we really are still trying to make things work. We hope to make some real progress in the coming weeks as I continue to lower my steroids and let my own immune system take the reigns.
Let the celebration begin, fire off the canon and fire works.
We Made it to DAY 100! Now on to day 365 and beyond.
I will keep posting so if you want an update this will still be the place. This adventure is long from being over so at this point I should still have something interesting to say every now and then, stay tuned.
THANK YOU ALL!
