Hello all, it looks to be about time for an update. Lets see, the check list is... Feet: they are good, the BK virus: is steadily getting better, hands: are great. So one would think all is well, actually if you have been reading this blog for any time now then you would know that is never the case. The new issues? One newer issue is a long lasting case of diarrhea (sorry guys, not sure I can leave this out). For the last 3 weeks now I wake and have 4 of 5 bathroom trips then things settle down for the afternoon (maybe 2 or 3 stops) followed by an evening of 4 to 5 more visits. All in all, I can have 10 trips or more in a day. We are scheduling a ??? test sometime next week to see if this is a GVHD issue. Next on the list is energy, I have very, very little of it. I have been doing my best to get into the office every day and get some work done. It has not been going that bad but it is really draining me. I basically get home and CRASH. That is I sleep for 2 hours, eat dinner and then go back to sleep again. It feels great to be able to go to work, but I wish I could still have a bit of an evening to just “hang out”. I then use the weekends to “recharge,” rest as much as possible, I would love to “do stuff” around the house but the energy just is not there. Finally the newest issue has to do with my left eye. For the past 2 days now, I have had the feeling that something is in my eye, but I can't find it or flush it out.
We were able to get in and see a Mayo doc today (not Dr. S), and he didn’t have any great input. In the end, he would like to see the results of the ??? test before making any medication changes for the diarrhea or energy issues. In fact, all he did was recommend that I see an ophthalmologist to take a look at my eye. We couldn't get something scheduled with a Mayo ophthalmologist, so Karen scheduled an appointment with a local doc for tomorrow.
