Monday, June 11, 2012

Cards and Well-Wishers (Day +117)

Over the past few months, we have accumulated a lot of “wishing you well” cards- I mean a lot of cards. We are not sure what the exact count is but it is well over 100. The dilemma has been that from time to time I like to reread the cards and we also wanted to display them somehow to that visitors and friends could see all the cards. So as the picture below shows, we have devised a working solution. Karen strung 10 or so cards on a string with a singe hole punch in the back side of the card allowing people to see the cards and yet we are still able to open and reread them. It has be a work in progress but it seems to be working just fine.



Now as for me... Things are still not progressing as I had hoped. We meet with Doc S. again and she explained that with the GVHD I had it kind of reset the clock and that she would put me at day 60 in the process even though we are now truly at day 117. I am not sure how that makes me feel but it is what it is. The past few weeks I have been feeling somewhat weaker and this week I seem to have caught something - I have a constant cough and low-grade fevers. Neither of which is all that bad but with my energy already depleted; adding in coughing every 2 minutes and the fever, I am wiped out in no time. I have been trying to get back into the office and have been successful a few times but I think my body is not quite ready yet. I still hope to try get in for a few hours this week and see how things go. As for my other issue areas, things are holding steady; hands and feet are manageable but still painful, food is still salty and right now my lungs are a mess. We just need to keep moving on, and see what the next day will bring. We know it will get better, it is just we are getting eager for the better to start.