Once again, it has been awhile since I blogged anything and am sorry about that. Things are just moving very slowly right now. I cant tell if I am getting better or worse. It just seems to depend on when you ask me. The current issue at hand is extreme swelling in my feet and lower legs- the swelling is causing so much pressure and pain that I need to take meds now and then. The doc's think this is a side effect and may not be a recurring GVHD issue, but they can't determine from what. So we stay status-quo and make another minor change to my steroids. Our goal is to get off all the steroids and let my body fight the ailments that come about. For now, the steroids are hindering my own immune system from getting in the fight. It's really a catch 22, I need the steroids to keep the GVHD in check yet I need them gone so that my body can take over. We will see what the next few days show, I am scheduled to go into the clinic next Tuesday (I know 3 whole days at home). Hopefully the doc will have a bit more info about the swelling and we can take the next step. As for the BK virus- it is getting better: I can go (sometimes) for over 30 minutes with out peeing (yeh!). Baby steps, but they are steps. Just wish at day 87 from transplant I would be in better shape. Oh well, I will sit back and see what tomorrow will bring.
Thanks Everyone
Tony
