Day +39

It has been a few days now so we thought I should post an update. We had a few days of fevers since I last posted and they had been the big issue. My temps would spike around 102+ and always in the early AM hours. I know 102 is not that bad but when you are already in a hospital bed for 10 other things adding heat to things doesn't help. It made it nearly impossible to rest (let alone sleep) with all the creams and lotions all over my body treating some of the graft verses host disease (GVHD). So getting your skin hot and trying to sweat under the stuff puts things on a whole other level. The docs have adjusted my meds and we are happy to say that I have not had a fever in over 24 hours. In fact the docs have made quite a few tweaks to my meds, first off they removed the order for all the lotions (and potions) and second they have changed most of the medicines from IV to oral. I don't want to presume too much here but last time that was the indicator of a ticket home. I am still on TPN and only allowed to drink fluids but we hope to work on that in the coming days. I may have to go home with the TPN. Man, I am starting have some real cravings for solid food, its been 16 days of the TPN stuff. Oh, one more med was removed - the “pain” med I had been on - continous drip of fentanyl- since I got here so it has been interesting to just be cut off, but things have been fine without it. OK time for a nap, thanks everybody for EVERYTHING - talk again soon.

Tony