Day +80

Well I managed to get discharged from the hospital late yesterday, so I am once again home and on my terms. There has been no great revelations or treatment options for the BK virus, in fact there is so little that can be done that the doc’s feel we can maintain things at home just as good (or better) than as an inpatient. So here I am at home peeing every 15 to 20 minutes.  You would be surprised how inconvenient these interruptions can be, even trying to read a book is tough as you end up rereading the same segment every time. We have been able to control the pain with the help of dilautin (some good stuff if you can get your hands on it), so that has made things a bit easier (and harder). Now that I am back on somewhat high doses of pain pills it is hard to stay focused and awake so I feel we are still stepping backwards. Ok I am not going to rant here, this is just an update.  We just have another hurdle to face as we get through all this.

Thanks Everyone.

FYI, Karen has closed the “care calendar” as we have kind stopped using it. With that said and people asking -  we are ready to take on any meals that people have been holding out with.

Sorry, it looks like I am not going to get the “peach fuzz” post out, but I thought I would throw-out the photo anyways.