Day -2 & -1:
This is Karen checking in today. Tony has not had the greatest of experiences these last couple of days. His 2nd kind of chemo was hard on his sinuses. Sunday evening he started to have bad pressure in his head and it escalated to a 7 out of 10 on the pain scale. Monday saw him with less pain but unable to rest and some nausea. Monday night was restful but Tony started his anti-rejection drugs Tuesday and it has not been pretty. He is getting a drug called Prograf, and in the interest of making everyone feel like they are here – There is a sign as you enter his room telling the nurses “PROGRAF CAN ONLY BE ADMINISTERED THROUGH THE WHITE PORT – IF ADMINISTERED THROUGH ANY OTHER COLOR, THE PORT IS CONTAMINATED FOREVER!” I especially like the emphasis on forever! Basically, this is a drug that needs care. Tony is also getting another drug called ATG and apparently this is the cause of his terrible day!
He is suffering from chills, fever, muscle spasms, pain, nausea... (Right now he has a fever of 102.8 and he has 5 ice packs positioned in various places on his body.) These are all expected side effects, but the fever is worrying.
Tomorrow is DAY 0! As things stand now, nothing going on today will stop the transplant. As I said above, while stinky for Tony, these are all expected side-effects, so GAME ON! We'll post again tomorrow!
Fight like hell Tony.
ReplyDeleteHang in there Tony! Let the nurses know how you are feeling and ask for intervention if it is not offered up soon enough. They will tell you it's too early if they have to but if you don't ask they may not be aware of your needs.... Karen, make him stand up for himself ok!? The nurses I met the other day were awesome and I am sure they are the best. But everyone misses something at somme point....
ReplyDeleteThanks for the update Karen...you guys hang in there, and if it helps at all, know there are many, many thoughts and prayers and well wishes coming your way everyday.
ReplyDeleteLove,
Auntie Betty